Plaque implant: Thursday, 4/28
Plaque removal: Monday, 5/2
I expect this time period to be very boring :)
I have diffuse iris melanoma in my left eye. This blog is my way of documenting the resultant events, logistics, and photos so that no one misses out on updates.
Thursday, March 17, 2016
Tuesday, March 15, 2016
I think this is a solved problem
I just called to schedule my surgery and the coordinator will be calling me back.
Why?
My chart is missing; she's not sure which doctor has it, but she has to track it down before we can schedule anything.
...
Why?
My chart is missing; she's not sure which doctor has it, but she has to track it down before we can schedule anything.
...
Friday, March 11, 2016
Details & plan
The exact wording the pathologist used was that the results of the biopsy are "suspicious for melanoma."
He therefore recommends plaque radiotherapy. Not sure what that is? It goes something like this:
<Philadelphia>
On a Thursday: I have surgery to have a radioactive piece of metal ("plaque") sewn to the surface of my eyeball over which I'll wear a lead patch (!)
On the following Monday: I have surgery to remove the radioactive plaque
</Philadelphia>
<Recovery>
Week 1: no driving
Week 2: no strenuous activity (no lifting anything more than 25 lbs), pools, or saunas
</Recovery>
I may have blurry, doubled, or distorted vision right away; I also may have flashes or floaters. These should subside as my eye heals from the radioactive intrusion.
I'll have follow-up appointments:
- at 2 months: here in Madison
- at 4 months: back in Philadelphia
Then, over the next year:
- I will develop a cataract
- I may develop cornea damage
I'll do a post on the science of plaque radiotherapy later (maybe). Nerds out there, this will have to suffice in the meantime:
Wednesday, March 9, 2016
It's not a first date!
"It's not a first date. When your doctor calls you at 6 AM to tell you that you have cancer, and then you call him back, he should pick up the phone!" - Andrew
-----------------------------------------
In the course of all this, there are certain to be amazing quotes. I usually keep a private quote book; in this case I'll share relevant, notable quotes with the tag "quote."
Welcome
This morning I found out I have melanoma in my left eye. I figure
that there will be many people with questions about this -- many more
than I can call and keep up-to-date consistently.
My mission:
*more on this later :)
My mission:
- To easily keep everyone informed
- To share information about what is possibly the most bad-ass cancer treatment I've ever heard of*
*more on this later :)
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